This syndrome is very rare that your chances of having another child with goldenhar are about 1% or less. Your child has about a 3% chance of passing it on to his or her own children. If you have a child that is born with this syndrome than you shouldn’t be afraid of having another child with it because the percentage is so low. The person with goldenhar syndrome might be a little bit more cautious about having children but the percentage of their children having the syndrome is still pretty low. You should also be aware that your child will most likely be born with other problems besides just the physical characteristic ones.
In addition to the physical characteristics common to Goldenhar, your child may have: hearing problems, weakness in moving the side of the face that is smaller, dental problems because the soft palate may move to the unaffected side of the face, the tongue may be smaller on the affected side of the face and your child may have fusion of the bones of the neck. Depending on the severity of these problems, your child may need to have some or all of the following surgeries: lowering of the jaw on the affected side, lengthening of the lower jaw, three to four operations to rebuild the outer ear, addition of bone to build up the cheeks, or they might need soft tissue added to the face. I know a little about these surgeries because my baby sister has had some of them, she was born with hemifacial microsomia and goldenhar syndrome.